“I feel like I am finally me.” Hysterectomy for PMDD success story
by msjekyllhyde
A quote from N, aged 40, who had a TAH/BSO in August 2012 for PMDD:
Hello Ladies, I just wanted to share something with you, especially any newbies because I know we all wonder if it’s not really PMDD and is it just “me”. The thing that kept me going through the long dark years of PMDD and misdiagnosis etc etc was that somewhere deep inside of me I had a memory of a happy child / girl who was full of love and had faith in the world. Somewhere in the hormonal hell I lost touch with that girl but that memory never left, in the end that was the only faith I had in anything. I am that girl again now at 40 years old, feelin that love and I feel like I am finally me xx
She also says:
Best decision I ever made. Saved me from myself. No walk in the park, not out of the woods with “behaviour” by any means but happier than I have ever been.
This resonated with me loudly, as I too feel like ‘myself’ again, post op. Thank you to N for permission to share this.
Life after hysterectomy for PMDD / PMS [aged 35]. UK 
WOW, do you know how long I have been trailing the internet for someone like you !!!! I have been after this kind of info and FINALLY you have given it to me !!!!
I have SO many questions I don’t know where to begin !! I live in Hertfordshire (not that this has anything to do with PMDD but i’m not in the US) 🙂 and after 12 years of what was thought “depression” and post natel depression, and years of different contraceptive pills and anti depressants I am finally on the right path to being convinced that I too suffer with PMDD. I am in consultations at the moment with my DR about a hysterectomy. I thought that at 35 he might just laugh me out of his surgery but he didn’t. He has tried me on Oestrogel which I rub on my arms on day 14 of my cycle but it hasn’t made much difference. I truly feel that a hysterectomy could be the answer to my, and my kids and hubby’s prayers!! I am like a different person for 3 weeks out of the month and its hurting my whole life !!! I have got burning questions but at the moment I have soooo many, I don’t know where to start, so let me have a think and I will come back to you. I feel like you have given me LOTS of hope and for that I am VERY grateful xx
Thank you for your kind words, glad it’s proving helpful!
Hi, I’ve tried to message you about a secret support group on Facebook, but the email has bounced back, fyi.
Hi,
My name is Christina and I have been under the care of Professor Studd since February 2012. I am 28 years old and haven’t got any children. I have asked to be referred for a full hysterectomy also to put an end to this hideous PMDD which I have been suffering from for years. I would like to ask you some questions in relation to your pre and post op oestrogen intake if I may? I currently take 6 doses of oestrogen daily (started off on three and worked up) and a quarter of a tube of testosterone alternate days. I cannot bear takin utrogestan so I have stopped since April and I am reluctant to take any other form of progesterone. How many doses of oestrogen did u take daily when you where on the injections prior to surgery? Professor studd has advised my gp I can have te zoladex injection if I wish prior to surgery but has suggested I take 2 doses of oestrogel per day. I’m aware that I wouldn’t need as much oestrogen if I had this injection but it seems a massive drop from 6. I’m just a bit confused as I think this may not be enough?!? Any help or information you could provide me would be much appreciated.
Many thanks
Hi Christina. I had Decapeptyl injections, and I think I was on 2-4 squirts of gel per day while I was on it, ie 2 but I could top up a little if I really needed it. I seem to remember that the reason for it being only 2 squirts is that it is not supporting fertility while you’re on the injections.
I felt very glad I had the injections as it was absolute proof for me what the problem was. I also declined other progestogens. Please ask any other questions you need to. All the best.
Hiya,
First of all thank you so much for writing this blog, I am sat here with tears in my eyes. I am 24 and since I hit puberty I have felt like I have been going crazy. I have been treated for depression/self harm before I had my son when I was pregnant I felt so wonderful and full if life and happy, my son is now nearly four and I think I am getting worse and more days of the month are taken up by this debilitating illness. I feel like I am going crazy, I scare myself, upset my family and bf. I can’t go on like this anymore. I am currently on venalflaxin 225mg and also take diazepam or quietiapine during my days before my period but they make me feel like crap!!! I need some help please point me in the right direction x x x x
Hi Neomy. I highly recommend that you use the free NAPS Forum. As well as finding support, have a good browse through the different treatments women have tried. I wish you all the best. Ms J&H